Glyn Tomlinson, GMC Member, The Hospital Saturday Fund, presenting £10,000 to Jo Woolley, Head of Palliative Care – Lead Advanced Clinical Practitioner and Jane Burns, Chief Executive Officer at Rainbows Hospice for Children & Young People.
Rainbows Hospice: Embracing Every Precious Moment
In 1989, Harry and Gail Moore’s daughter, Laura, died of Leukaemia, after 3 years of treatment, including a bone marrow transplant from her twin brother, Kit. Her favourite thing was a rainbow. Her parents wanted to create something special in her memory – which is how Rainbows began in September 1992.
The Vision: Creating a Rainbow Experience
Rainbows Hospice supports every baby, child and young person to fulfil their potential, and helps families make the most out of every precious moment, while capturing memories and keepsakes to treasure. While continuously, providing support for the whole family, offering comfort and compassion during tough times, providing the highest level of professional care, and support thereafter.
Rainbow Hospice’s aim is to advance the hospice vision and create a “Rainbow Experience” across the East Midlands. To do this they need to expand their clinical team so that they can understand, assess and act on the needs of the babies, children and young people in Rainbows Hospice care.
End-of-Life Comfort: Advanced Clinical Practitioner Project
Rainbows Hospice has initiated an Advanced Clinical Practitioner project to look after the care of babies, children, and young people who are approaching the end of their life, with the aim of keeping them within their chosen place for care and end-of-life support.
The role of an Advanced Clinical Practitioner is quite varied and demanding. It can include working at hospices and addressing daily issues, visiting families either at their homes or at hospitals, attending multi-disciplinary team meetings to aid in care planning, providing support to families during consultant meetings and providing on-call support to patients during their final moments.
An Advanced Clinical Practitioner ensures that the Rainbows experience can be offered wherever the family chooses, at home, in hospital or within the hospice.
Supporting Families Until The End: The £10,000 grant
The Hospital Saturday Fund presented a grant of £10,000 to Rainbow Hospice. This grant will go towards the Advanced Practitioner project, ensuring that every affected child and family receives the comprehensive ‘Rainbow Experience’ they deserve.
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