Visit to the Spina Bifida Hydrocephalus Scotland
June Devlin and I visited Spina Bifida Hydrocephalus Scotland in Glasgow on 26th November, to present a donation for £2,000 in memory of Nicola, June’s daughter, who sadly passed away in September.
Aims of the Spina Bifida Hydrocephalus Scotland
Spina Bifida Hydrocephalus Scotland was founded in 1965 (then known as Scottish Spina Bifida Association) by a small group of dedicated parents who each had a child with Spina bifida.
The aim of the Charity is “to seek to increase public awareness and understanding of individuals with spina bifida and / or hydrocephalus and allied conditions. It aims to support all those affected to identify their needs and to empower them to make informed choices and decisions.”
What is Spina bifida?
Spina bifida is a birth defect in which there is incomplete closing of the spine and membranes around the spinal cord during early development in pregnancy.
Currently, there is no cure for spina bifida, however therapies such as physiotherapy and occupational therapy help make day-to-day life easier and improve independence.
The Dan Young Building
We visited the purpose-built Dan Young Building, which offers support facilities for children and their families, and adults with spina bifida and hydrocephalus.
Nicola (pictured left) was a regular visitor to the centre and there are a number of photos of her displayed on the centre walls.
To find out more about Spina Bifida Hydrocephalus Scotland, please visit their website: https://www.sbhscotland.org.uk/